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TRUTHFUL HISTORIES

E. D.

My name is E.D. I have 48 years and on the 24.04.01st was operated of acoustic neuroma in the right ear.
Everything started more than six years ago, when a humming appeared very carries in my right ear. That humming was alike the one that feels after go out from a disco for a silent place and that soon passes. Well, in my case since started, never passed and I started to get more worried. I visited several medical otorrino in the first four years and never got one diagnose. All the exams that I did, kind Bera, labirintite, diabetes, cholesterol, etc, never revealed anything and all the doctors told me that could not medicate, because it never appeared anything in the exams. During these four years only audiometria exam showed that my audition was more and more reduced, arriving to a hearing loss of about 50% in the end of the four first years.

A certain day, I was to carry my son to consult a throat problem in a new otorrino that I had chosen by first time, why it was close to it marries. I seized the opportunity and commented of my case and of all that I already had done. He asked me if I had already done an exam of magnetic resonance. How I said that never there were me request, he asked me that exam. when bringing the result, July on the 16th 1998, he revealed me that I was bearer of a acoustic neuroma. In spite of having me illustrious that cared forred a small benign tumor, and that I would not have to decide with urgency, I would have to look for a surgeon. Well, in this hour my world seemed have tumbled and I started a marathon of medical consultations with neurosurgerons, otorrinos, radiosurgery, etc..
Lamentably, all my marathon, inclusive with doctors abroad, it let me more and more confused because each professional had his arguments that your method was the best. Until seemed to me a right trade, because each one finished arguing that his method was the best. Well I ca not tell which I was the best, but after almost 22 research months, but in my case, for confidence total and empathy with ultimo medical that I consulted, opted by the neurocirurgia with accompaniment of an otorrino.

The access was by the cesspool. It was open a cut in the format of a half moon behind my right ear, in the region of the scalp, for then can access the tumor, which was lodged in the hearing nerve, almost pressuring the brain, because it had grown of 0,9 cm in 1998 to 2,5 cm at that time of the surgery in April 2001.
The surgery took too long 10 hours, come in preparatives, the surgery in himself and the conclusion but I did not feel anything, because it was with general anesthesia. I was recovering me very well, but after three days of the surgery, recovery was interrupted by an accidental that is called fistula,whose indication was, in my case, of a liquor leak by the nose. For that accidental, which times happens, had to get more time in hospital (12 days) because it was necessary to drain that liquor with a catheter placed in the spine for 5 days to eliminate this fistula. I finally was home where I remained for 30 days in recovery and today am perfectly well.
My sequel was the loss of the audition of the right ear, due to the size and the location of the tumor and also a facial paralysis, which this already practically corrected, due to physiotherapy that I do daily with much discipline, alem of the weekly accompaniment and now fortnightly of an excellent physiotherapist.
I want here to let clear that in my case was very happy. After three months of the surgery I already started a practically normal life, which will certainly come back to the normal in in maximo 6 to 8 months of the surgery.

The option of operating abroad seemed to me unviable for several aspects:

• It is very difficult that some convenio of health covers surgeries abroad, unless they are emergencies for a travel..
• The price of a surgery as this abroad belongs from three to four times as expensive as in Brazil, and here we have excellent professionals and great hospitals.
• The inconvenient of idioma,do cost of the aerial ticket are inevitable.
• The lodging of the companions for a long period, once that after the surgery the operated needs to be in observation for some 15 days to prevent accidental eventual to the moves away.
• The recovery before the return to Brazil is necessary. international travels comings of to Europe or United States can take too long from 8 to 13 hours , unassuming time of waits at the airport and accidental eventual.
I hope with my deposition, to help in the decision outlet from whom is passing what I passed. Have faith and try to feel confidence in your medicate. The empathy with the doctor is a great step for a successful surgery

E.D.

Notes of the Author of the Site:
I knew E.D in a hospital in São Paulo, while I go out from my exam of magnetic resonance for accompaniment post surgical of my Acoustic Neuroma, E.D was coming in. In minutes in which we talk E.D, I and my mother, my mother explained my problem to E.D. After about a month, E.D linked us (he caught our phone in hospital) for tell us that it was with the same problem and that it needed a help
CONHECIDENCIA OR DESTINY ?
It would like to thank E.D because it was the first to write and to send your history to publish in the site and also by the participation in the development of the same.
E.D wish you SUCCESS in life, and that this experience has turned you a better person in everybody feels them than you was before.

A friend's great hug,


Bruno R.Tamassia
PS: If you want to contact E.D, please send e-mail to:nf2@neurinoma.com.br

 

 

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